My Remission

Why do I feel like my tips matter?  What sets me apart from other RA patients that I feel my experiences should be shared?

Friends, I believe that for approximately six months last year, I had a remission.  My doctors and I took a chance by going off one of my medications, and I felt great until cooler weather came around.  I am back on that medication now, and I firmly believe that I will be in another remission by summer 2010.  I know that I won’t be able to go off of my medication if I want to maintain that remission, but now that I do know I believe I will be able to go into a remission and actually stay in it.

There aren’t a whole lot of success stories out there, which is why I think it’s important that I share with you how awesome remissions are, and what to expect of them exactly.

Firstly, remissions are not pain free.  But don’t hang your head: you hardly notice it at all.  Seriously, consider all the pain you are dealing with right now, and then think if three quaters of that pain was gone.  It’s paradise!  You have to take care of yourself, though.  So even though you are feeling great, it’s not wise to go run a marathon.  You can run the risk of reactivating your RA.  However I will tell you that I was able to walk all over the Little Rock zoo last summer and barely had to take any breaks.  I didn’t feel any pain.  It was a blast!   So much so that I made my boyfriend take me again a few weeks later.  I also took a couple trips to the lake and swam.  I spent hours swimming and walking around Lake DeGray, and again, I felt fantastic. When classes started again, I could walk to class, carry my books, and not fall asleep in class.  Okay, maybe one class….but everyone feel asleep in that class.  (xD)

Morning stiffness was gone, so getting out of bed was a cinch.  Granted, the fatigue was still there.  But fighting the sleepies is soooooooooo much easier when you feel well.  All I had to do was get out of bed, and then I was awake the rest of the day.  Those darn sleepies didn’t stand a chance!

My remission was a blessing, and I’m doing everything possible to get back to that point by taking my medications regularly and on a strict schedule, knowing my limits physically, following the tips I’ve been blogging about, and by staying positive.  Half of happiness (whether with full blown, severe Rheumatoid Arthritis or not) is making up your mind to be happy.  A positive attitude is the best tool you have to fight your RA with.

6 Comments (+add yours?)

  1. Candi
    Mar 14, 2010 @ 07:33:40

    I completely agree about the positive attitude making a difference. I had a pretty bad year with my RA last year and it made me realise that life is short, and you might as well make the most of what you can and being positive and practical with your RA and your life makes everything easier. I’ll admit I still have some bad days and I have a cry every now and then but I can still walk, I can still pick up my nephew and niece and I am still doing a lot of what I want to be doing in life. I just have a few more things to think about everyday. Keep up the good blogging and I am glad you are writing what I know a lot of us (RA people) are thinking 🙂

    Reply

  2. Beth
    Jun 22, 2010 @ 16:08:06

    I too am a young adult sufferening from RA. I was diagnosed a year ago, but probably have had it longer.
    Like, you I am in remission. I am not 100 % better, but I am sooooo much better than 6 months ago. I have been on Enbrel for 6 months and it has given me my quality of life back! 🙂 I am a Critical Care Nurse, and I continue to work even through painful moments. I enjoy the little things like doing dishes!LOL …and walking my pup! I still deal with the fatigue. I have adjusted to trying to go to bed @ a decent hour since I am a night owl. I sleep when I am tired! Most of all , I stay positive! that is key! 🙂
    I love positive RA stories!

    Reply

    • Cari Elliott
      Jun 28, 2010 @ 02:49:53

      Staying positive is key! It’s amazing how much your attitude can change your life. I’m glad that Enbrel has been as effective for you as it has for me, it really is a miracle drug! Thank you for sharing, Beth. 🙂

      Reply

  3. Cathy Prentice
    Sep 24, 2010 @ 02:23:16

    My only remission happened 20 years into my disease… I had been married less than 3 yrs, he couldn’t deal with my RA after all. When I left, it was so exhilerating I went into a 2 1/2 year ‘free space’…. lasted until my new man moved 350 miles away for his new job… he is now home again (we are coming up on 7 yrs) but the remission didn’t come back. BUT, he is able to accept my limitations, even carrying me to the tub (after catching me crawling one morning) so I can soak and loosen up. Our garden last summer was very relaxing and almost zen-like, he put our folding canopy up where ever I was going to weed since I have to stay out of the sun, or I weeded where the house shaded me in the evenings. The big plus, I did notice an improvement by eating home grown, not processed, store bought veggies…. canned and froze everything I could and we are still enjoying it.

    Reply

  4. Melanie W.
    Jun 27, 2014 @ 03:26:25

    I thought I was the only one with the bum thumb! You inspire me! Thanks for your blog.

    Reply

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